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Friday, May 27, 2016
Gluten-Free vs. Gluten-Reduced Beer (infographic)
This infographic from the naturally gluten-free Coors Peak beer is a great reminder of the differences between gluten-free and gluten-reduced beers. Please note, there are differences! Many of the gluten-reduced beers (also known as crafted to remove gluten, gluten-removed, less gluten, etc.) have very deceiving marketing which could be confusing even to the most gluten-free savvy consumer. Don't let the ads fool you. Know the differences.



If you are noticing gluten-reduced beers in the gluten-free section of your store, print this out and show it to the manager. Let them know that outside of Oregon, the beers cannot be legally be labeled gluten-free if they are only gluten-reduced. For more information about labeling laws for beer, click here. Please share with others.


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Monday, May 23, 2016
Celiac Awareness Month eCookbook
If you are like me, you might get stuck in a food rut. You know... eating the same things week after week because you know what is easy to make for your family. Thanks to Beyond Celiac for their free eCookbook in honor of Celiac Awareness Month it is time to get inspired in the kitchen again. This cookbook is full of recipes for appetizers, salads, entrees, and desserts which are all 100% gluten-free. The book is free to download, so be sure to grab your copy today. 


Download the Beyond Celiac eCookbook

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Friday, May 20, 2016
Gluten-Free Events This Weekend (May 21-22, 2016)


There are so many awesome gluten-free events going on across the country this weekend. I wish I could go to all of them. Which one do you plan on attending? Did I miss your event? Put it in the comments below!

Saturday 
May 21, 2016

Greater Philly Gluten-Free Expo
Oaks, PA

The Rochester Gluten-Free Health and Wellness Expo
Rochester, NY

Gluten-Free and Wellness Expo with G-Free Foodie
Whole Foods Monterey
Monterey, CA

Gluten Free Taste Fest
Plum Market West Bloomfield
W. Bloomfield, IL

Gluten and Allergen Free Wellness Event
St. Louis, MO

Gluten-Free Tasting Expo
Sunset Foods Market
Long Grove, IL

Gluten-Free Wine and Dessert Night
Davio's Manhattan
New York City


Sunday 
May 22, 2016

The Fifth Annual Mid-Hudson Walk for Celiac Disease
Poughkeepsie, NY


Have a great weekend! 

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Tuesday, May 17, 2016
60 Seconds for Celiac Disease
If you are reading this blog, you are already taking the time to learn and continue your education about celiac disease. I encourage you to take another sixty seconds to watch this video and then visit BeyondCeliac.org for even more information about living with celiac disease.

 



 Have another 10 seconds? Share this video on Twitter by clicking below! 

Tweet: Take #60ForCeliac with @gfreefun and @BeyondCeliac! #celiacawareness http://ctt.ec/y1lId+


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Thursday, May 12, 2016
Would You Eat Gluten for $160?
A very interesting email popped up in my inbox yesterday that got me angrier the more I read it. The University of Chicago Celiac Disease Center is recruiting patients for a clinical trial for a pill to treat celiac disease. I've said it before but I would never want to take a pill for celiac disease. I would rather pay attention to the food I am ingesting daily. I've been doing it for almost 35 years now so adding another medication to my body is of no interest to me! On the flip side, I do know many of my readers are interested in some kind of medication to manage celiac disease and might be willing to be in a clinical trial.

But this trial rubbed me the wrong way. If enrolled in the study, you need to eat gluten bread, go in for six study visits, have blood drawn, provide stool samples, and get an endoscopy in exchange for a whopping $160. Wait, what??? 

First of all, I would miss multiple days of work if I had to eat even one quarter of a slice of regular gluten bread. Traveling to and from the trial would become impossible unless I had a toilet nearby! I would also miss a full day of work for an endoscopy. That is approximately 3-4 days of missed work and is worth way more to me than $160.

Second of all, I don't believe there is not enough evidence about the long-term damage of eating even a little bit of gluten on someone with celiac disease. Have the trial coordinators considered this in their preparation?

Lastly, I would like to understand UPFRONT the way Montelukast will treat celiac disease and how symptoms will be monitored. According to the Mayo Clinic website, Montelukast has side effects that include: "abdominal or stomach pain, flu-like symptoms, general feeling of discomfort or illness, headache, joint pain, shortness of breath or troubled breathing, and unusual tiredness or weakness."
Sorry University of Chicago, but you won't get a clinical trial study out of me. I don't know about you, but I have at least two or three of these symptoms (if not all) every time I ingest gluten. NO THANK YOU.

What do you think about this trial? Do you think you would participate? If not, why? I would love your comments below!



A Pill to Treat Celiac Disease?
Now enrolling patients to a clinical study! 

WHO: you may be eligible for this study if:

  • You are age 18 and older
  • You have celiac disease
  • You have been on a gluten-free diet for at least one year
  • You are willing to eat gluten (bread)

WHAT: testing of Montelukast (a drug that has been approved by the FDA for treatment of asthma) for the treatment of Celiac Disease

If enrolled, you will be given the drug or a placebo and asked to:

  • Come to up to 6 study visits
  • Have multiple blood draws, endoscopy with biopsy and brushings, and provide stool samples
  • Answer some questions regarding your health


WHERE: University of Chicago Medical Center

Subjects will be reimbursed up to $160.00 if all visits are completed and will receive parking vouchers.



NOTE: This is the exact email I got about the trial. If you have questions, please contact the University of Chicago Celiac Disease Center directly. 

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Monday, May 9, 2016
Spread the Word About Food Allergies
Today is the beginning of Food Allergy Awareness week. As someone who has both celiac disease and a shellfish allergy, I think it is important to assume others don't know much as you know about your personal allergies. It is important to educate others and this is a great week to start!

I love these posters from FARE that are created for those who play a supportive role in managing your food allergies. Please share them with your family, friends, and employers. To see all of the Food Allergy Awareness Week posters, visit www.foodallergy.org








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Wednesday, May 4, 2016
Celiac Disease and Food Allergy Awareness Month Resources
There are so many wonderful resources for celiac disease awareness month and food allergy awareness month, that I wanted to share them all! I appreciate all of the hard work and resources that these national organizers have put together for our community. If I am missing any key resources, leave a comment below!

Please click on the image for more information and a direct link to the resource page. 











Gluten Intolerance Group




Asthma and Allergy Foundation of America



Kids with Food Allergies



World Asthma Day
Global Initiative for Asthma

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Monday, May 2, 2016
Happy Celiac Awareness Month
I am one day late kicking off the 2016 Celiac Awareness Month because I was in a non-stop weekend of celiac and Gluten-Free Fun! I had the pleasure of both attending and presenting at the Celiac Disease Foundation National Conference and Expo in Pasadena, CA this weekend. I have so much to report back on including all of the yummy gluten-free food I discovered, the scientific research and information I learned, and more importantly all of the wonderful people I met. I have always blogged about how the supportive celiac people are more important to me than the food and this conference reinforced how important community is to living with celiac. More to come but in the meantime...


HAPPY CELIAC AWARENESS MONTH!!!


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