The First Annual Mid-Hudson Walk for Celiac Disease

I am really excited to participate in the 1st Mid-Hudson Walk for Celiac Disease on May 19th. This part of the Hudson Valley holds a special place in my heart since I am a Marist College alumni and I spent four wonderful years in this area. Details about my participation are still being decided by the planning committee but it looks like I might be at a table for gluten-free bloggers. I will keep you posted. If you are in the area on May 19, please come to this fundraiser and say hello! 

http://www.digestivediseaseny.com/walk-for-celiac/

More than 2 million Americans suffer from Celiac Disease, a digestive disorder that damages the small intestine and interferes with the absorption of nutrients in food.  People who have Celiac Disease cannot tolerate gluten, a protein in wheat, rye and barley.

All proceeds from the Walk for Celiac Disease will benefit the Celiac Disease Foundation, Hudson Valley Chapter and the ongoing research programs of the Celiac Disease Center at Columbia University.  This Walk will help educate the greater Mid-Hudson Valley Community about this disease and will, hopefully, make those with Celiac more aware of the education, support and other resources available to them in the Mid-Hudson Valley.

Through diagnosis and dietary education, the Digestive Disease Center of the Hudson Valley dedicates itself to helping people with Celiac feel better and to improving their digestive health and quality of life.

To this end, the Digestive Disease Center has created the Digestive Disease Center Community Fund in an effort to diagnose individuals, to educate patients and clinicians, to advocate for patients and to promote gastrointestinal health in the Mid-Hudson Valley Community.

CHECK-IN: 9 am Highland Walkway Entrance

WALK BEGINS: 10 am @ Highland Entrance of the ‘Walkway over the Hudson’ to Poughkeepsie side and back. Music provided by Q-92 Lite FM.  The Walk will be followed by a Gluten-Free Fair with music, gluten-free food and vendors.

Pre-Registration: $20 (Includes walk, t-shirt and bottle of water)
Late Registration: $25 on Day of Event

http://www.communityfoundationdc.org/page10005650.cfm

If you can't join us for the walk, please consider sending your donation online below or mail your check to the address below. Make check payable to Digestive Disease Center Community Fund:

The Walk for Celiac Disease
Community Foundations of the Hudson Valley
80 Washington Street, Suite 201
Poughkeepsie, NY 12601

For more information about the walk, contact Jeanine Agnolet, Event Organizer, 845-249-8554 or e-mail jagnolet@ gmail.com.

http://www.communityfoundationdc.org/page10005650.cfm

Me on the Walkway over the Hudson. Look at that gorgeous view!

 Click here for more information about the Walkway including driving directions.

The Celiac Disease Foundation's Gluten Free Resource Directory

I got this email yesterday and it looks pretty interesting. I think a free smartphone app would be even more helpful!

The *NEW* online CDF Gluten-Free Resource Directory provides you - FREE of charge - with a unique and easy, one-stop guide to all things Gluten-Free!

Each category has been carefully selected to provide you with products and services that simplify and demystify the gluten-free living experience. 

The *NEW* online CDF Gluten-Free Resource Directory is dynamic, constantly evolving, growing, changing and being updated with new products and services every day.

So, be sure to check the site often to take advantage of some great promotions and new-to-market products available to you and your family. 

Go to www.celiac.org and click on the button at the top of the page!!!

OR direct at cdfresourcedirectory.com

Send a Gluten-Free Kid to Camp!

I am really excited about this fundraiser to send kids to gluten-free camp for one week. Next July, the Celiac Disease Foundation is hosting their very first week-long gluten-free summer camp. In the holiday spirit of giving, Gluten-Free Saver has partnered with Van’s Natural Foods to help raise money for scholarships for children to attend the gluten-free summer camp next July!

This week only when you donate just $2 (or more if you choose), Van’s Foods will match all donations until they reach $1,000. Help support the cause and reach the goal of $2,000 total at www.glutenfreesaver.com.

Sure, receiving gifts this time of year is always fun, but the feeling of knowing that your generous donation of just $2 can bring a tremendous amount of joy to a young child… well, now that’s priceless. 100% of all donations will go directly to CDF. If you’re feeling extra generous this holiday season, you aren’t limited to donating just $2 – you can give as much money as your heart desires!

As a camp enthusiast, I think this fundraiser is fantastic. Please consider donating this holiday season to send a kid to gluten-free camp!

Gluten-Free Camp 2012 with the Celiac Disease Foundation

If you read my blog, you will know I love camp. If you spend time with my sister and I, inevitably we will probably tell you a camp story or sing you a camp song. We are those girls that say "And one time, at 4-H Camp..." without the gross band-camp stores. ;-)

I went to day camp for many years and then went to DPF Nassau County 4-H Sleepaway Camp for 7 years.  All of my camp years were as a kid living with Celiac on a gluten-free diet. Camp memories are wonderful memories that I will never forget. I still keep in touch with some camp friends thanks to Facebook and I plan on sending my own children to camp one day. It truly was a great experience.

Unfortunately for parents of Celiac children they are often too nervous to send their child away to camp for fear of being glutened when away from home. I completely understand this feeling. I had my own milk crate of gluten-free food in the walk-in fridge at camp and developed a great relationship with my camp cook, giving her a big tip at the end of every summer. Even with my own food crate, there was still always a risk of getting sick when being fed mass-produced food. My camp cook never heard of being gluten-free but she was willing to hold my food and help me out with special meals when needed. I will never forget the first time she handed me a plate of gluten-free French toast made with my bread on a Sunday morning. It meant the world to me! I ate a lot of salads during the summer, but I also safely enjoyed countless meals while drinking bug juice. (if you went to camp, you know what I mean!)

Luckily, things have changed in the past 15 years and now more and more camps are offering gluten-free weeks. I think this is a wonderful idea and I encourage parents to sign their kids up for these camps. It will help put your mind at ease knowing that the facility, the counselors, and the organizers understand Celiac Disease and the necessity of serving gluten-free food to your children.

I am excited to announce that the Celiac Disease Foundation is having their very first Children's Celiac Camp in July30 - August 3, 2012 for kids ages 7 to 15. This week-long session promises fun activities, amazing outdoor activities in the San Bernardino Mountains, and most importantly gluten-free food all week long. If you live in California or nearby, I really do encourage you to sign your kids up for this gluten-free camp week. Trust me, it will be a memorable experience for your child!

Click here for the full-sized flyer.

You can read more about camp and download all of the registration forms by clicking here.

CDF Annual Education Conference & Food Faire

Celiac Disease Foundation presents their Annual Education Conference & Food Faire
Saturday, May 14, 2011

Hilton Hotel
Los Angeles/Universal City
555 Universal Hollywood Drive
Universal City, CA 91608

REGISTER NOW

CDF Annual Education Conference & Food Faire 2011 will provide you with a greater understanding of Celiac disease, gluten sensitivity, dietary compliance, future therapies, associated conditions and the effect on family members. Network with other people following the gluten-free lifestyle. Meet with exhibitors, sample and discover the latest gluten-free foods and services. Join us for an exceptional day of gluten-free food, facts and fun!

FEATURING TOP INTERNATIONAL SPEAKERS

Alessio Fasano, M.D.
Professor of Pediatrics Medicine, Physiology,
Director Mucosal Biology Research Center
University of Maryland School of Medicine,
Medical Director, Center for Celiac Research (CFCR),
University of Maryland

Martin F. Kagnoff, M.D.
Professor of Medicine, Emeritus,
Director, Laboratory of Mucosal Immunology,
Director, William K. Warren Medical Research Center
for Celiac Disease, University of California San Diego

Robyn Karlstadt, M.D., MACG
Vice President, Scientific Leader, Gastrointestinal Business Unit
SHIRE - a global specialty pharmaceutical company

Danna Korn
Respected authority on the gluten-free diet
Motivational Speaker and Author of numerous books including
Living Gluten-Free for Dummies 2nd Edition
and Gluten-Free Kids 2nd Edition
Founder R.O.C.K. (Raising Our Celiac Kids)

Carol Fenster, Ph.D.
President/Founder Savory Palate, Inc.
Internationally-recognized expert on gluten-free cooking
Award-winning Publisher and Author of gluten-free/allergy-free cookbooks and other helpful resources for people with food allergies, Celiac disease, autism, and other medical conditions
that require a special diet

GUEST APPEARANCE
Frank Baldassare
www.themissingingredienttv.com

Q & A
Alessio Fassano, M.D. and Martin F. Kagnoff, M.D.

The Art of Gluten-free Bread Making
Carol Fenster, Ph.D.

Parents of Celiac Children
Danna Korn
Founder R.O.C.K. (Raising Our Celiac Kids)

CDF Connections and Chapters
Meet Support Group Leaders and Members

Young Adults & Teens Get Together
Ryann Fraser
CDF Ambassador - Elite triathlete, NYU student, Wilhelmina model
Carrie Willoughby
U.S. Paralympic cyclist and former U.S. Paralympic swimmer

Ask the Dieticians
Alicia Calvo, MPH, RD, CDE
Evette Richardson, RD, MS, CFT
Registered Dieticians with specialty in Celiac disease,
gluten sensitivities and the gluten-free diet
Certified Diabetes Educators

Presentation of the CDF
2011 Champion of Celiac Disease Awareness Award

Meet the Authors, Video Hosts and Bloggers

Book Sales & Signing
Danna Korn - "Living Gluten-Free for Dummies 2nd Edition"
Carol Fenster - "100 Best Gluten-Free Recipes"
Elizabeth Kaplan - "Fresh from Elizabeth's Kitchen"

Download CONFERENCE ANNOUNCEMENT for more details!

REGISTER NOW

Lifetime Television Features Celiac Disease Foundation

Tune in to "The Balancing Act" on Lifetime TV
October 25th at 7:00 am (ET/PT)
6:00 am (CT/MT) on Lifetime Television

Hear Phyllis Kessler, President, Celiac Disease Foundation South Florida Chapter, talk about the efforts the foundation is making to raise awareness of Celiac and provide resources to those who currently suffer from the disease.

"Celiac Disease Foundation has been raising awareness of this vastly under diagnosed disease for over 20 years. Celiac is one of the most common genetic disorders in the world, yet most people don't even know what it is. The Balancing Act is a great opportunity to educate viewers about this disease and make them aware of the resources and guidance that CDF provides."

Over the years, CDF has built a community of patients, families, and healthcare professionals whose combined efforts have helped improve the quality of life for people with Celiac Disease. They have also tirelessly promoted early detection of the disease, which can drastically lower the chances of more severe consequences like osteoporosis, anemia and infertility.

"Having Phyllis Kessler from the Celiac Disease Foundation on 'The Balancing Act' has brought yet another great solution to women, one that will have a real impact, and help them balance their lives. This is the essence of solutions-based programming, and we are proud that we could bring this information to our viewers" says Doug Campbell, Founder and Executive VP of Programming for The Balancing Act.

Click here to read the entire press release.

Mary’s Gone Crackers Supports Celiac Awareness Month

Mary’s Gone Crackers and the Celiac Disease Foundation Suggest Ways to Raise Awareness for Celiac Awareness Month

Gourmet Gluten-Free Snack Company and Non-Profit Support Organization Encourage Understanding of Celiac Disease with 10 Tips to Spread Awareness

Gridley, Calif. (May 3, 2010) – In honor of National Celiac Disease Awareness Month in May, Mary’s Gone Crackers, makers of gourmet gluten-free foods, and the Celiac Disease Foundation (CDF) have released a list of 10 ways to help promote awareness of the disease. Celiac Disease affects approximately one in 133 people; nearly three million Americans nationwide.

Celiac Disease is one of the most common genetic conditions in the world, but often goes undiagnosed because it is a multi-symptom, multi-system disorder. It is estimated that 97 percent of Americans with the disease often go undiagnosed.

10 ways you can help raise awareness include:

1. Support National Celiac Disease Awareness Month by spreading the word! Send out an email, or post it on Facebook or Twitter.
2. Prepare your favorite gluten-free dish for your next gathering, then print copies of your recipe and place it by your dish to share!
3. Write your congressperson and ask them to co-sponsor/support H. Con. Res 110 designating May as Celiac Disease Awareness Month.
4. Give the gift of health – Next time you give a gift, consider a basket filled with your favorite gluten-free products. Include Mary’s Gone Crackers and let people know that you don’t have to be gluten intolerant to enjoy the healthy, wholesome taste!
5. Contact the health editors of your local newspaper and ask them if they know about Celiac Disease. Write them a letter and share your story.
6. Share current books – Celiac Disease for Dummies, by Sheila Crowe, MD and Ian Blumer, MD; Revised and Updated: Celiac Disease: A Hidden Epidemic by Peter H.R. Green, MD; or Healthier Without Wheat by Stephen Wangen, MD. Read them and pass them on to people who you think may benefit from learning more about Celiac Disease or how gluten may be the cause of their illness.
7. Find out if there is a health fair or vendor fair coming to your town and offer to set up a table with information on Celiac Disease and how to get tested. Contact the Celiac Disease Foundation for the free awareness brochures, “Are You The One?” which covers symptoms, testing, tips and more!
8. Check to see if there are any local benefits or marathons that support Celiac Disease – join or volunteer! Check out Team Gluten-free™ and help raise awareness and funds through participation in local and regional races.
9. When you visit a friend or neighbor in the hospital, or have a regular physical or dental exam, take the opportunity to talk to doctors, dentists, nurses, healthcare workers, and dieticians to help increase their awareness of Celiac Disease and the gluten-free diet needs of Celiac patients.
10. Word-of-mouth. The best way to raise awareness is to just tell somebody about Celiac Disease. Share your story!

“We’re excited to collaborate with Mary’s Gone Crackers to help promote dialogue and raise awareness for Celiac Disease,” said Elaine Monarch, founder/executive director of the Celiac Disease Foundation. “With so many people still going undiagnosed, we hope these tips will motivate people to share their experiences and knowledge of Celiac Disease, helping others to learn more about it and increase the rate of diagnosis.”

Common symptoms of recurring bloating, gas, abdominal pain, chronic diarrhea, constipation, unexplained weight loss or weight gain, bone or joint pain, migraine headaches and unexplained anemia are often and unknowingly caused by Celiac Disease. Since many people living with Celiac Disease go undiagnosed, it is important for anyone displaying one or more of these symptoms to consult a doctor for testing. Symptoms vary and are not always gastrointestinal.

“Celiac Awareness Month is an ideal time to spread the word of this widespread condition and we’re dedicated to encouraging discussion among people living with or without Celiac Disease,” said Mary Waldner, co-founder of Mary’s Gone Crackers. “Ever since my son and I were diagnosed with Celiac Disease, we eliminated gluten from our diets and reclaimed our health, which encouraged me to create a line of gluten-free snacks so others can do the same!"

To learn more about Celiac Disease, visit www.celiac.org. For more information about Mary’s Gone Crackers, visit www.marysgonecrackers.com.


About the Celiac Disease Foundation
Since 1990, Celiac Disease Foundation (CDF) has been dedicated to promoting awareness to increase the rate of diagnosis. CDF is constantly expanding the supportive community for patients, families, healthcare professionals and the food service industry. CDF is actively involved in advocating for patient concerns and networking with other national and international organizations to improve the quality of life for Celiacs and their families. For more information, please visit www.celiac.org.

About Mary’s Gone Crackers
Founded in 2004, by Mary Waldner and Dale Rodrigues, Mary’s Gone Crackers manufactures a line of delicious gourmet, organic, gluten-free, vegan foods including crackers, pretzels (Sticks & Twigs) and its new line of love Cookies. Mary’s Gone Crackers always uses certified organic, kosher, whole food ingredients that contain no added trans-fats, eggs or dairy. Mary’s Gone Crackers’ products are available in natural and grocery stores nationwide. Mary’s Gone Crackers is a proud sponsor of the Celiac Disease Foundation. For more information, please visit www.marysgonecrackers.com.

Greater Phoenix Gluten-Free Expo

Come one, come all to the Greater Phoenix Gluten-Free Expo!

Saturday, May 22, 2010
10 am to 2 pm

Sheraton Crescent Hotel
2620 West Dunlap Avenue
Phoenix, AZ 85021

Sponsored by the Celiac Disease Foundation: Greater Phoenix Chapter

They invite you to explore the world of gluten-free living, one tasty treat at a time!

* Sample and take home a variety of gluten-free products
* Discover local gluten-free bakeries, restaurants and markets
* Sign up to win gluten-free baskets packed with goodies
* Converse with vendors

Cost is only $5 per adult; children under 18 are free. Cash only accepted at the door.

Please select the 'Pre-registration' link here to sign up today! Registration will also be taken on-site the day of the event.

Click here for more information.

Celiac Disease Foundation: 20th Anniversary Celebration

Annual Education Conference & Food Faire

Saturday, May 15, 2010
8:00 am to 4:00 pm

Los Angeles Downtown Marriott Hotel
333 South Figueroa Street
Los Angeles, CA 90071

**FEATURED SPEAKERS**

Peter H.R. Green, MD Director, Celiac Disease Center at Columbia University

Sheila Crowe, MD Professor of Medicine, Gastroenterology and Hepatology, University of Virginia Health System and Researcher

Shelley Case, BSc, RD Registered Dietitian, author, speaker, and leading international nutrition expert on celiac disease and the gluten-free diet

Anne Lee, MSEd, RD, CDN Registered Dietician, Certified Diabetes Nutritionist, Director of Nutritional Services for Schär. Previously with Columbia at the Celiac Disease Center.

Frank Baldassare, “The Missing Ingredient”

CDF 20th Anniversary Celebration Dinner
Saturday night, May 15, 2010
6:00 pm

Dinner not included in Conference Registration. Reserve your seat today!

Also featuring

“Ask The Dieticians” – One on One with Registered Dieticians
Presentation of 2010 Champion of Celiac Disease Awareness Award
Continental gluten-free breakfast and lunch
GF Goodie Bag with each registration
Gluten-free food demos
CDF Connections & Chapters – meet local support group leaders
Gluten-free pizza and beer tasting
Book signing with Dr. Green & Dr. Crowe
Over 50 vendor displays including gluten-free food samples and sales
Fundraising raffle

REGISTRATION INFORMATION
The focus of the CDF 2010 Annual Education Conference is to develop a greater awareness of Celiac Disease, associated conditions, dietary compliance and how family members are affected. Join us as we celebrate 20 years of generating awareness and support.

CDF MEMBERS
In celebration of our 20th Anniversary, CDF is offering a special discounted registration rate to CDF members who register with a family member or friend before April 12th.

Register before April 12th with a family member or friend at the discounted rate of only $80 each. (This is a $15 discount per CDF member registration fee of $95).
Individual CDF member registration - $95

This discounted rate is only good until April 12th.

Youth (under 14 years) $50

NON- CDF MEMBERS
Registration - Before April 12th - $120 – After April 12th - $140

Note** - If you become a CDF member for the annual fee of $35 per family, you will save $25 on a single conference registration, even more if you bring a family member or friend!

Registration for ALL -- AFTER APRIL 12th

All registrations after April 12th -- $140.
Walk-ins the day of the conference -- $140.

Parking at the Los Angeles Downtown Marriott included with registration.

NOTE**: there will NOT be a supervised Children’s Program this year.

Don’t wait! Space is limited, register now.

REGISTER NOW – click here

HOTEL INFORMATION
Staying overnight for the conference? Space is limited. Book NOW for special CDF rate!

Online room reservations at the Los Angeles Downtown Marriott are now just a click away! Simply click on the link below or cut and paste into your browser. You will be directed to the hotel’s reservation page with the code already entered in the appropriate field. All you need to do is enter your arrival date to begin the reservation process.

Reserve Your Room Now

Or call Reservations at 800-260-0227 and ask for special CDF conference rate

SPONSORSHIP/EXHIBITOR INFORMATION
For sponsorship opportunities and exhibitor information contact: deborah@celiac.org

Gluten-Free Food Expo on 2/27/10 in FL

Saturday February 27, 2010
Noon - 4pm

Free Parking
Free Admission

So County Civic Center
16700 Jog Road, Delray Beach
between Linton & Clint Moore)

Sponsored by:
*Enjoy Life Brands
*Pamela's Products
*Cabot Creamery
*Bob's Red Mill
*Pam's Gluten Free Kitchen
*Lisanatti Foods
Plus, over 60 other Gluten Free companies will be exhibiting too

Hosted by the Celiac Disease Foundation So. Florida Chapter

Don't Forget! Celiac Disease on Dr. Oz 12/10

A newly diagnosed CDF members, Amy Geibelson, will be featured on the Dr. Oz Show which will focus on celiac disease. The show is scheduled to air on Thursday, December 10. You can check the Dr. Oz Show website for local stations and airtimes at http://www.doctoroz.com/sites/default/files/oz_wheretowatch.pdf

Also on the show will be Elizabeth Hasselbeck and Dr. Peter Green, Director, Celiac Disease Center at Columbia University. Dr. Green will be a featured speaker next year at the CDF Education Conference and Food Faire in Los Angeles on May 15, 2010.

CDF thanks Dr. Oz for doing a show dedicated to celiac disease and raising awareness nationwide! CDF hopes this show will educate and encourage people to learn more about their digestive health and that of their friends and family!

Betty Crocker Gluten-Free Dessert Mixes

As you may have read in the gluten-free news and blog world, Betty Crocker is coming out with gluten-free dessert mixes in June. Oh wait, it's June now!!! Although I haven't seen the mixes yet, you can look online to see if the gluten-free mixes are at a store near you. Unfortunately, they are not availability within a 50 mile radius of my apartment or my sister's house in CT. I guess I will have to wait a little bit longer.

I contacted Betty Crocker to see when the mixes might be available and here was their response:

Dear Miss Smith:

Thank you for contacting General Mills regarding the availability of Betty Crocker gluten free mixes. These mixes were released to the market at the beginning of June so it may take a couple weeks for them to appear in grocery stores and on the product locator. However, you could ask a manager at your store if they have ordered or plan on ordering these products.

We would like to see all our products on shelves in every store. However, as the number of items on the market increases, grocers face the dilemma of finding sufficient shelf space to display products. Retailers stock the products and brand choices they feel best meet the majority of their customers′ needs.

We do offer an online product locator, which you may find helpful in finding this product in your area. Please visit our corporate web site at www.generalmills.com and select “Brands”, then “Product Locator” on the left side of the screen to utilize this feature. Or if you prefer, you can call us at 1-800-249-0562, Monday through Friday, 7:30 a.m. to 5:30 p.m., Central Standard Time. One of our Consumer Services Representatives will be happy to initiate the product search for you.

We also offer a ′Hard to Find Products′ web site, http://generalmills.elsstore.com/ which may contain the item(s) you are looking for. Additionally, while we don′t have any involvement with the fulfillment of groceries through Amazon.com, they do have some of our products available for direct purchase and shipment (including APO′s).

We appreciate your loyalty to our products. Please let us know if we can be of further assistance.


Betty Crocker, owned by General Mills maker of the gluten-free Chex line of cereal, is a proud supporter of the Celiac Disease Foundation (CDF) and Celiac Sprue Association (CSA).

Celiac Disease Foundation
Betty Crocker® is a proud sponsor of the Celiac Disease Foundation, a national organization dedicated to promoting awareness and building a supportive community for celiac disease patients, families and health care professionals. CDF is actively involved in advocating for patient concerns and networking with other national and international organizations. For more information, check out celiac.org or call (818) 990-2354.

Celiac Sprue Association
General Mills is a proud CSA Benefactor Member of the Celiac Sprue Association. Celiac Sprue Association with members and chapters nation-wide assist those with celiac disease. Celiac Sprue Association provides lifestyle information to all people on a gluten-free diet. For more information, check out csaceliacs.org or call 1-877-CSA-4-CSA.

Celiac Disease Foundation on Hasselbeck's Book

Although I got this information a little late in terms of being able to call into Larry King, I feel that it is an interesting take on Elisabeth Hasselbeck's new book "The G-Free Diet".

Celiac Colleagues:

I am writing to call your attention to the current publicity surrounding the new book, The G-free Diet, A Gluten-Free Survival Guide by Elisabeth Hassselbeck, co-host of The View. While it is important to call attention to celiac disease, the information must be accurate – the inaccuracies in this book are potentially dangerous and detrimental to celiacs and to those yet to be diagnosed if people self diagnose and start eating GF. Our mission is to assist in getting people accurately diagnosed and the message in this book could defeat this mission. It appears that this book is being marketed as a fitness diet – eat g-free and feel so much better. Celiac is incorrectly referred to as an allergy not an autoimmune disease.

The GF diet is the medically mediated prescription that controls the condition for a diagnosed celiac. Several items in the book are misleading and inaccurate and place further limitations on the GF diet. The gluten-free lifestyle is a lifelong commitment for the diagnosed celiac, not an option, not a fad diet – adhering to the GF lifestyle requires patience and persistence. This lifestyle can not be trivialized.

Elisabeth will be interviewed on Larry King Live this evening on CNN. PLEASE take the time to call in to the show or send an email to Larry King Live to help correct some of this misinformation.

Email Larry King Live at: http://www.cnn.com/feedback/forms/form5.lkl.html
The phone number for call-ins to the show is 1-800-676-2100.

Thank you.

Elaine Monarch
Founder & Executive Director

Help for the Gluten-Free Displaced by SoCal Fires

As seen on Gluten-Free NYC on 11/20/08

From Maryrose Hopke of the Celiac Disease Foundation (CDF):

If you have celiac disease and have been displaced from your home by the recent fires in the Southern California area and are in need of assistance in finding gluten-free foods, please contact CDF at 818-990-2354. We're here to help!

FREE Community-wide Celiac Disease Blood Screening in Florida

FREE Community-wide Celiac Disease Blood Screening in Florida

Now taking appointments for FREE Community-wide Celiac Disease Blood Screening Day....brought to you by the Palm Beach County Celiac Support Group, a Chapter of the Celiac Disease Foundation and Prometheus Labs.

Date: Saturday, December 6th starting from 9AM-1PM
Location: So. Florida Gastroenterology
Dr. Bromer
1325 So. Congress Ave, suite 211
Boynton Beach, FL

PLEASE make your appointments ASAP. There are only 100 free tests available.

This screening is NOT for anyone who has been diagnosed with Celiac Disease. This test is for at-risk individuals who have family members with CD, those with symptoms related to CD, or individuals affected by other autoimmune disorders, commonly associated with CD. This is your chance to encourage your friends, neighbors, co-workers & family members to finally be tested.

Cutoff date for appointments will be on December 2, 2008

Call Phyllis Kessler at 561-637-0396 to schedule your appointment

Celiac Disease Foundation benefit screening in Los Angeles - 27 Dresses

What a fun benefit and a really cool idea. If I was in Los Angeles, I would definite go to this screening. Have fun!

RSVP by January 4th

Attention Friends and Members of CDF in the Los Angeles area!

Celiac Disease Foundation is pleased to announce an Exclusive Pre-release Movie Screening of

Spyglass Entertainment's
27 DRESSES
(rated PG 13)
from the Screenwriter of The Devil Wears Prada

Starring Katherine Heigl, star of Grey's Anatomy & Knocked Up.

Wednesday, January 9, 2008
7:00 PM

Landmark Theater
Westside Pavillion
10800 West Pico Blvd.
(between Westwood & Overland)
Los Angeles, CA
Free Parking
Located in Mall Parking Structure

This Screening will kick off CDF's 2008 Celiac Disease Awareness Campaign
"Are You The ONE?"

Donation: $ 20.00*
(includes snack & a drink)

To purchase your tickets:

Order online at www.celiac.org
Click on Donate Now and Make a General Donation (indicate "27 Dresses")

OR

Mail check payable to:
Celiac Disease Foundation
13251 Ventura Blvd., Suite 1
Studio City, CA 91604
check memo: 27 dresses

*Tax Deductible to the extent allowed by law

Please RSVP by January 4, 2008 - Seating is Limited

For more information contact Fundraising Chairman, Marc Riches at (805) 368-5777

Team Gluten-Free Announces '08 Schedule!

Team Gluten-Free™, a project of the Celiac Disease Foundation, a 501(c)(3) non-profit, public benefit corporation, is a training program for runners, walkers and cyclists who participate in races across the United States to raise awareness and funds for Celiac Disease. The money we raise goes directly to research and awareness programs and camp scholarships for Celiac children.

Ways you can be a part of Team Gluten-Free™
* Select a race from the race calendar and complete registration form.
* Don't see a race near you? Find out about our Bring Gluten-Free To Your Town program.
* Recruit friends and family to participate.
* Donate to the team.

Here are just some of the cities where Team Gluten-Free™ participants will be running in 2008: Salt Lake City, Lake Tahoe, Los Angeles, San Diego, Long Beach, Phoenix, St. Louis, Fargo, Duluth, Dallas, Birmingham, Austin, Long Branch (NJ), Lake Placid, Virginia Beach, Columbus, Knoxville, Nashville, and Cincinnati.

Please visit the Team Gluten-Free™ website for more information about joining a running team or bringing Team Gluten-Free™ to your town!

http://www.teamglutenfree.org/

Ener-G Foods to Support Victims of the S. California Wildfires

I just got back from a very interesting vacation in San Diego. My second day in So Cal there were over 5 wildfires burning in San Diego County. By my third day, more than 50% of my hotel was filled with fire evacuees. It was quite a scary time to be there, but I worked hard for my vacation and I decided to stay. I had to cancel my trip to Palm Springs since every way out of San Diego county that I had planned for was blocked by fires. I wanted to avoid driving through any potential unsafe zones, so I extended my time in San Diego. Let me tell you, it isn't a bad place to be "trapped" but I just wish it had been under different circumstances. People were enormously generous to the over 500,000 evacuees but I couldn't help but wonder what people with Celiac Disease were to do when most of the food donated was stuff we couldn't eat. David, of Gluten-Free NYC, posted about gluten-free food for evacuees and I think it is important to get the word out.

Today while I was searching the internet, I also found out that Ener-G Foods is coordinating food donations with the Celiac Disease Foundation and the American Red Cross to help those on restricted diets. People affected by the wildfires can contact the Celiac Disease Foundation for more information on how to obtain these donated foods:

Celiac Disease Foundation
Elaine Monarch
www.celiac.org
1-818-990-2354
cdf@celiac.org

If you wish to contribute to the Disaster Relief Fund, please contact:

American Red Cross
PO Box 37243
Washington DC 20013
www.redcross.org
1-800-REDCROSS

Please consider donations specifically for the California Wildfire Disaster Relief Fund. From being there, I know first hand the devastation these people are going through. My heart and prayers go out to Southern California.

FREE Summer Camp for Celiac Kids at Camp Arroyo in Livermore, California

I am so incredibly jealous of this opportunity. I would have loved to go to a completely gluten-free summer camp back in the day.

Announcing a special offer! FREE Summer Camp (only $25 registration fee) for Celiac Kids at Camp Arroyo in Livermore, California! This special session, from August 20-23 for kids 9-17 years old, is being sponsored by Celiac Disease Foundation, Team GlutenFreeT,Celiac Sprue Research Foundation and Taylor Family Foundation.

All activities, food and snacks are presented in a gluten-free environment!

For more information contact: campceliac@gmail.com for registration package. Include name, gender and age of camper. For more information about the camp visit www.ttff.org

SPACES ARE STILL AVAILABLE. TAKE ADVANTAGE OF THIS GREAT OPPORTUNITY!

Celiac Disease Foundation in partnership with Team GlutenFreeT is also pleased to provide a limited number of scholarships to summer camps for celiac kids. A child on a gluten-free diet may have difficulty at a mainstream camp, but shouldn't miss out on the experience. There are several Celiac Camps across the country, offering celiac children everything from boating, canoeing, swimming, arts and crafts, low and high ropes challenge courses, adventure programming, field events, and team work. Most importantly, all meals are GLUTEN-FREE, including campfire treats and
barbecues.

Visit www.celiac.org/kidskorner.php for more information.



Celiac Disease Foundation
13251 Ventura Blvd. Suite 1
Studio City, CA 91604
818/990-2354 phone
818/990-2379 fax
www.celiac.org

Celiac Disease Foundation presents 2007 Annual Education Conference & Food Fair

Annual Educational Conference and Food Fair
May 19, 2007
Good Samaritan Hospital
Los Angeles, California

Celiac Disease Foundation presents their Annual Education Conference & Food
Fair on Saturday, May 19, 2007 at Good Samaritan Hospital in Los Angeles,
California from 8:30am to 4pm.

Speakers include Chaitan Khosla, PhD, Research Scientist and Professor of Chemical Engineering and Chemistry, Stanford University, Andrea Levario, JD, Executive Director, American Celiac Disease Alliance, Ted Malahais, DDS, Researcher, Richard Ottenstein, PhD, Psychologist, and Annette Taylor, MS, PhD, President and CEO, Laboratory Director, Kimball Labs.

This year, CDF has expanded the Food Fair to include special demonstrations
and tastings by Jessica Hale of GlutenFreeda who will present a gluten free
gourmet food demonstration and tasting and Anna Sobaski of Gluten Evolution
who will demonstrate the many uses of her Pie Crust Mix including an
assortment of sweet and savory fillings.

There will also be Extensive Vendor Displays with samples and sales. A
Continental gluten free breakfast and lunch will be provided with
registration. The new gluten free bakery in Los Angeles, The Sensitive
Baker, will be providing rolls and breadsticks for the lunch buffet.

Registration before April 30th is $90 for members and $115 for non-members.
After April 30th the fee is $130. Walk-ins the day of the conference will
also be $130. Children between ages 5 and 14 are $40. Free parking with
validation is available at the parking structure directly across the street
from the Conference Center.

There will be an all day supervised Children's Program for celiac kids and
their siblings ages 5 and up. Included in the day's activities will be Q&A
with a psychologist and registered dietician, arts & crafts activities and
gluten free snacks.

Lunchtime mini sessions will include discussion groups for people newly
diagnosed, teens and young adults. Author Karen Fine will have her new kids' book "How I Eat Without Wheat" for sale and be available for book signing.


Register by calling Celiac Disease Foundation at 818-990-2354 or online at
their website www.celiac.org.

Celiac Disease Foundation
13251 Ventura Blvd. Suite 1
Studio City, CA 91604
818/990-2354 phone
818/990-2379 fax
www.celiac.org

Visit the Celiac Web Page at http://www.enabling.org/ia/celiac/index.html