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Tuesday, July 19, 2011
Stubborn Celiac?
Readers, I need your help.

I know most of you are not medical professionals but so many of you have been through a battery of tests, doctors, and dead-ends in the medical community before getting your Celiac diagnosis. I am not looking for a medical diagnosis here, but just an opinion given the symptoms of a family member. To me, all signs point to Celiac Disease and I feel that this person needs a new doctor to tell them this since the primary care physician keeps saying no Celiac. What do you think?

Medical history

  • Emergency gall bladder removal 20 years ago
  • Diagnosed with Barretts Syndrome in the esophagus
  • Daily medication for Barretts Syndrome
  • Recent weight loss of about 10 pounds for no apparent reason
  • Liver lesions
  • Colonoscopy and Endoscopy determined to be clear
  • Lower right quadrant abdominal pain led to CAT scan that was clear
  • No blood work or genetic testing performed
  • Two first-degree relatives with Celiac Disease 
  • At least one second-degree relative with Celiac Disease

PLEASE NOTE: I am not a medical professional and do not encourage you using this blog as a medical advice column. I am simply looking for your opinions here. Please enter them in the comments section below. 

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Anonymous Anonymous said...

I'd say it's Celiac 100% without a DOUBT IT MY MIND. I can totally relate to the gallbladder thing... this all touches too close to home.

Blogger Kristina said...

It sounds like a celiac panel (blood work) is in order at the very least. As a kid, EVERY YEAR some doctor would want to test me for diabetes because two family members have it. Autoimmune diseases act similarly in the family way. I would at least suggest getting tested for autoimmune issues.

You are a pretty awesome friend!

Anonymous Barb said...

I would wonder why that dr. didn't run the celiac panel. It sure sounds like celiac to me. If not that, gluten sensitivity. He may have to find a new doctor. I had to run away from my g.p. She endangered my health several times, one of which was telling me that my problems were due to nerves! My new g.p. sent me to a gastroenterologist and was finally diagnosed after 30 years of symptoms.

Blogger jdhs223 said...

Does this person have some sort of resistance to getting tested? It seems like the obvious next step is blood testing and that if the cutter doctor won't do it it's time for a new one, or at least a side "second opinion" or specialist (if he or she doesn't want to leave her PCP entirely).

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