The Celiac Project Podcast: Live From Indy

When I was in Indianapolis for the Gluten-Free Food Allergy Fest last month, I FINALLY got to meet Michel and Cam from the Celiac Project Podcast in person. I say finally because I've spoken to these guys both on the phone and over Skype but we never met face to face. These guys are the best and I felt like I was meeting my long-lost celiac brothers. Both Michael and Cam are truly genuine, friendly people and amazing celiac advocates. Their mission to spread information about living with celiac disease, eating gluten-free, and everything th. If you aren't already listening to their podcast, you should be.

Michael, Cam, and I at the Indianapolis GFFA Fest

Join Mike and Cam for their first podcast recorded live on location with their special guests, Erin Smith (Gluten-Free Globetrotter and Gluten-Free Fun) and Margaret Clegg (MI Gluten Free Gal). We have a spirited round-table discussion about all things celiac and gluten free. This is part 1 of our exciting, interactive presentation in Indianapolis. We answer great questions from the audience as well.

Take a listen to part one of the "Live from Indy" Celiac Podcast here:

National Celiac Association Fall Meeting

The National Celiac Association is hosting it's fall meeting on Sunday, October 29, 2017 in Norwood, Ma. It will feature presentations by nutritionist Melinda Dennis, MS, RD, LDN and endocrinologist Partha Sinha, MD and Emma Clerx, an intern living with celiac disease.

What Celiacs Need to Know!

How bone health, nutrition, and self-management affects celiac disease

Sheraton Four Points Norwood, MA

1125 Boston Providence Turnpike 

Norwood, MA 02062 

Sunday, October 29 1-4pm

Here is the meeting agenda:

• 1:00 – 1:30 Check-in
• 1:00 – 1:30 Visit with vendors
• 1:30 Lee Graham: Introduction
• 1:40 Dr. Sinha: Maintaining a healthy skeleton in celiac disease
• 2:10 Endocrinology questions & answers
• 2:20 Emma Clerx: How long until truly gluten-free?
• 2:40 Questions & answers
• 2:50 – 3:10 Break, visit with vendors
• 3:10 Melinda Dennis MS, RD, LDN: A summary of current topics (arsenic, probiotics and non-responsive celiac disease)
• 3:40 Nutrition questions & answers
• 3:50 – 4:00 closing

Tickets start at $20 for the whole day. Visit the National Celiac Association website for more information and to buy your tickets today. 

Stanford Health Day at the Gluten Free & Allergen Friendly Expo

The Gluten-Free & Allergen-Friendly Expo is coming back to California for the first time in more than three years. In addition to this weekend-long expo, a key component of this year's event is a Stanford Health Education Day. This information-packed day will include topics such as celiac disease symptoms, treatments, follow-up, and future therapies. These speakers are presented by Stanford Health Care and Stanford Children’s Health in partnership with the Celiac Community Foundation of Northern California

To attend these wonderful lectures, you must purchase a ticket to the GFAF Expo. Today is the last day for 30% off with code EARLYBIRD (thru 10/17). If you buy your tickets after today, use code ADVANCE for 20% off your ticket prices.

When: November 18 & 19, 2017
10:00 am – 4:00 pm on Saturday the 18th
10:00 am – 3:00 pm on Sunday the 19th

Where: San Mateo County Event Center-Fiesta Hall
1346 Saratoga Drive
San Mateo, CA 94403
(650) 574-3247


BUY YOUR TICKETS TODAY! 

Stanford Health Education Day at the Gluten-Free & Allergen-Friendly Expo
Saturday Speakers and Topics

“Demystifying Celiac Disease – From Symptoms to Diagnosis”10:30AM-11:30AM
Presenters: Nasim Khavari, MD, MPH & Nielsen Fernandez-Becker, MD, PhD
Overall classic celiac “diagnosis and treatment,” presented by the directors of the Stanford Celiac Disease Program, Dr. Nasim Khavai and Nielsen Fernandez-Becker. The presentations will include discussion specific to celiac vs. NCGS/NCWS/FODMAPs, highlighting all the services available within the Stanford Celiac Disease Program.

“Gluten-Related Disorders: Follow-Up Treatment & Future Therapies”
12:00PM – 1:00PM
Presenter: Peter H.R. Green, MD
After a diagnosis of celiac disease or gluten sensitivity – what’s next? Dr. Green will discuss clinical management of gluten-related disorders (celiac and non-celiac gluten or wheat sensitivity), including follow-up visits, vaccinations, and poorly responsive and refractory celiac disease. He will also review the exciting array of non-dietary therapies that are under development.

“Debunking the Myths Around Celiac Disease and Food Allergies”
1:30PM – 2:30PM
Presenters: Dr. Nasim Khavari, MD, MPH, Dr. Nielsen Fernandez-Becker, MD, PhD, Sayantani (Tina) Sindher, MD, Andrea Gilbaugh, RD, Neha Shah, MPH, RD
The expert panel will discuss gluten-related disorders (celiac disease, non-celiac gluten sensitivity, non-celiac wheat sensitivity, low FODMAPS), allergy and immunology responses in both pediatric and adults patients, while inviting audience questions and participation!

“Food Allergy Facts – What Helps to Improve or Worsen Your Food Allergy Symptoms”
3:00PM – 4:00PM
Presenter: Sayantani (Tina) Sindher, MD
A focused discussion around nut and overall food allergies (including gluten), including interesting facts around the science of immunology.


BUY YOUR TICKETS TODAY! 

Celiac Disease Foundation New York 5K Turkey Trot

My friend Craig is at it again organizing an awesome event for the celiac community. Join Craig and the Celiac Disease Foundation on Saturday, November 4th in Oyster Bay, NY for the 2nd Annual New York 5K Turkey Trot. Read on for more details.

Celiac Disease Foundation is excited to host its 2nd Annual New York 5K Turkey Trot run/walk on Saturday, November 4, 2017, in Oyster Bay, New York. This year's 5K event will again take place at Theodore Roosevelt Park. 

The 2nd Annual Turkey Trot is sponsored by Namaste Foods. 

Registration will begin at 8am, and each participant will receive a Team Gluten-Free t-shirt, enjoy music, and take home post-race gluten-free snacks to enjoy. The 5K run/walk will start at 9am, rain or shine, and medals given out to the top finishers in four different age brackets. 

Proceeds from this event go directly toward driving diagnosis, treatment, and a cure for celiac disease. 

We have partnered with Island Harvest Food Bank and are asking that participants please bring canned or non-perishable food to donate to families in need. 

Early Bird Registration is now available through October 13th.  

For more information, contact Craig Pinto at craig.pinto@celiac.org.

If you cannot attend in person, you can always donate online at:
http://tgfturkeytrot.kintera.org/faf/home/default.asp?ievent=1175597 

The Bold Beyond Celiac Research Symposium

Many of my readers often tell me that the celiac events are too far or too expensive to attend. Now is your chance to participate in real time!

On November 9, 2017, join Beyond Celiac in person or via webcast for The Bold Beyond Research Symposium. They are calling this the "premier event for celiac research!" It is free to participate, but registration is required. Click here to register today.

The Bold Beyond Research Symposium

November 9, 2017

5:00PM — 6:30PM EST

Drexel University 

Papadakis Integrated Sciences Building 

Chestnut St & S 33rd St

Philadelphia, Pennsylvania 19104

Moderated by Alice Bast, Beyond Celiac CEO, with panelists:

Ciaran P. Kelly, MD, Director, Celiac Center and Director, Gastroenterology Fellowship Training, Beth Israel Deaconess Medical Center; Professor of Medicine, Harvard Medical School

Anthony J. DiMarino, Jr., MD, Chief, Division of Gastroenterology & Hepatology, Thomas Jefferson University Hospital

Ritu Verma, MD, Section Chief, Gastroenterology, The Children's Hospital of Philadelphia; Assoicate Professor of Clinical Pediatrics, Perelman School of Medicine at the University of Pennsylvania

The symposium will also be webcast, offering viewers nationwide the opportunity learn about the most current celiac disease research developments. Local and national corporate sponsors, including media sponsor CBS Radio Philadelphia, will support the event.

Click here to register today.

Introduction to Mend Hunger, A Free-From Food Pantry

While in Indianapolis two weekends ago, I had the honor of meeting part of the Chicago-based Mend Hunger team. Mend Hunger is "a nonprofit that works with food pantries to provide gluten free and allergy safe foods to individuals with a medically restricted diet and financial need."

As we all know, gluten-free and allergen-safe food costs significantly higher than "regular" food and this can be a financial burden for families. For those of us with multiple celiacs in the family, we know how expensive mealtime can be. Without access to safe foods parents and children are left to choose between health and hunger.

Mend Hunger partners with food pantries in Illinois to provide allergy and gluten free food at no-cost. Today, they serve the residents of more than 10 cities including Glencoe, Wilmette, Kenilworth, Winnetka, Glenview, Northbrook, Lincolnwood, Skokie, Niles, Golf and Morton Grove.

In order to help close the gap between hunger and health, Mend Hunger needs our support to continue providing this vital service to their Illinois neighbors. They are having a fundraiser on November 11th in Glencoe, Illinois.

Candlelight Cabaret: A Jazz Experience

Saturday, November 11, 2017

6-9pm

Join Glencoe Rotary International in supporting Mend Hunger at the Takiff Center on November 11th. Guests will enjoy a live candlelight cabaret celebrating the greatest singers and songwriters of our time, while enjoying a charcuterie style dinner featuring gourmet cheeses, artisanal breads, fresh fruit, and sliced meats. Guests will have the opportunity to participate in the silent auction and win raffle prizes while enjoying seasonal craft beers. This event is Gluten-Free. Guests must be 21+.

Tickets start at $75 and sponsorships are still available. Please contact Aleksa Hacker, executive director of Mend Hunger, at aleksa@mendhunger.com.