Research Study for Children With Celiac Disease

I got this call for research participants from Nicole Jordan, MD at New York-Presbyterian, The University Hospital of Columbia and Cornell. Please contact Dr. Jordan directly if you have any questions.

Dear participant:

We would like to invite you to participate in a Celiac Disease research study that will include completing two questionnaires. The purpose of this is to understand what it feels like to live with celiac disease. The overall goal is to use your responses to test a questionnaire designed specifically for children with Celiac Disease. We would greatly appreciate your participation.

You do not have to participate in order to receive care. There is no harm to
completing the questionnaires. The benefit of participating is that you will assist in the testing of a questionnaire which may improve the quality of life of children with Celiac Disease. You do not have to complete the questionnaires because participation is completely voluntary. Your name will not be included in the questionnaires.

Please contact Dr. Nicole Jordan at celiacdiseaseQOL@yahoo.com or at
617-251-4803 if you wish to participate or should you have any further questions. If you have questions about your rights as a research subject, please contact the Institutional Review Board at 212-305-5883.

Respectfully,
Peter Green, M.D.
Professor of Clinical Medicine
College of Physicians & Surgeons
Harkness Pavilion, Suite 936
180 Fort Washignton Avenue
New York NY 10032