Do you know anyone that's had Celiac Disease for more than 5 years? More than 10 years?
More than 30 years???
Yep, you do. It's me.
A Celiac Story from Erin: 30 Years of Experience
Read more...
Labels: "Erin Smith", "gluten-free fun"
Labels: "Erin Smith", "gluten-free fun"
Labels: "super bowl", gluten-free, recipe
Labels: "Paul Taylor Dance Company"
Labels: "Kettle Cuisine", gluten-free, soup
Labels: "NYC Celiac Disease Meetup", "Schär USA Inc.", "The Celiac Diva"
North American Society for the Study of Celiac Disease
Many people have long felt that the lack of a single, comprehensive organization to guide the cause of celiac disease in the U.S. has slowed progress in terms of finding better treatments and a cure. This all changed with the formation of the North American Society for the Study of Celiac Disease (NASSCD), which was born at the International Celiac Disease Symposium in Oslo, Norway last June. This organization, initially headed by Dr. Guandalini, is currently in the process of incorporating. Its goals are to foster the study of celiac disease in young investigators, to be a clearinghouse for major issues in celiac disease as well as major research initiatives, and to help guide precious resources and funding to those research projects that appear to be the best designed, with the greatest chance of a positive outcome, as determined by peer review.
We are so pleased to be working with the very best minds in North America and welcome the opportunity to set the very highest standards and best practices for physicians in this field to follow. Stay tuned in the coming months for more information about the NASSCD as it becomes available.
Labels: "NASSCD"
Title: | Intestinal Immune Based Inflammatory Diseases 2 day Symposium, for patients |
Course Director(s): | Peter H.R. Green, M.D. & Ellen J. Scherl, M.D., FACP, AGAF |
Dates: | 03/02/2012 - 03/03/2012 |
Location: | Faculty House at Columbia University 64 Morningside Drive (Between 116th and 118th Streets) New York, NY 10027 |
Course Number: | Med PM 125 |
Description & Objectives: | Please join us for the first Intestinal Immune Based Inflammatory Diseases 2 day Symposium hosted by the Celiac Disease Center at Columbia University and the Jill Roberts Center for Inflammatory Bowel Disease, Cornell University and is sponsored by the College of Physicians and Surgeons of Columbia University. This symposium is a separate concurrent program for patients. This gathering will bring an unprecedented opportunity for each of you to help shape the future of intestinal immune based inflammatory diseases by participating in the symposium. Celiac disease is an emerging disease that has increased 5 fold over the last 50 years. The educational opportunities for individuals involved in the diagnosis and care of people with celiac disease is lacking. Experts will discuss information about epidemiology, incidence, diagnosis, management as well as reasons for the underdiagnosis and the increased mortality associated with celiac disease. IBD is a continually evolving subspecialty area of gastroenterology. There is a great need for ongoing educational programs that describe the management classification and use of the increasing number of novel therapies that are being developed for Ulcerative Colitis and Crohn’s disease. |
Accommodation: | Contemporary Travel Inc. is the designated official travel agency for the Intestinal Immune Based Inflammatory Diseases 2 day Symposium this March. They guarantee the lowest airfare at time of booking. Contemporary Travel is holding a block of rooms at the Ink48 Hotel specifically for this conference. They have negotiated a significantly reduced rate for this hotel. The reservation will need to be made through Contemporary Travel to secure the reduced rate. All reservations must be received by January 26, 2012. 653 11th Avenue (11th Avenue and 48th Street) New York, NY 10036 Please contact Gail Weiss or Judy Barth at Contemporary Travel: Gail Weiss: gweiss@contemporarytvl.webmail.com Judy Barth: judyb@contemporarytvl.webmail.com Telephone: 1.866.406.0033 |
For Additional Information: | Please contact Cynthia Beckman at cb2280@columbia.edu |
Gluten-Free* Gourmet Weekend in Partnership with the New York City Celiac Disease Meetup Group | |
Join Good Commons and The New York City Celiac Disease Meetup Group for a worry-free decadent getaway. Whether you have dietary restrictions or are traveling with a loved one, our on-site chefs and health & wellness experts will ensure delicious meals, culinary adventures, and a chance to experience the bounty of the Green Mountain State. Weekend includes:
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ABOUT US: Good Commons was originally built in the 1840's and operated as a general store. It has been lovingly renovated ans restored and now features six bedrooms and a sleeping loft, six bathrooms, two living rooms, and a multi-purpose studio. The property features all of the modern amenities of one's own home, while still creating a warm and inviting environment that honors the historical traditions that have characterized the house for more than 160 years. CLICK HERE for a virtual tour. TRAVEL INFORMATION: The Good Bus leaves promptly at 6:15pm on Thursday, June 21 from 45th Street between 9th and 10th Avenues in Manhattan. Drop-off will be at the same location on Sunday, June 24th, approximately 5:30pm depending upon traffic. Providing your own transportation? Inquire about our discount. Please contact: tesha@goodcommons.com PRICING: http://www.goodcommons.com/GF2012meetup.html $75 Early registration discount through March 31st, 2012 Bedroom prices per person, based on double occupancy $700 - discount = $625 Deluxe Shared Bedroom, includes steam shower $675 - discount = $600 Standard Shared Bedroom $575 - discount = $500 Farmhouse Style Loft -- charming shared sleeping quarters Gratuity not included. To register and receive and early bird discount, please click here for your initial $225 deposit/per person to hold your spot! All deposits are non-refundable. Deposits are transferable to another retreat or vacation rental pending availability if cancellation is received by May 31, 2012. Absolutely no refund, deposit or payment transfers will be made if cancellation is received after the above cancellation deadline of May 31, 2012. Balance must be paid in full by June 14, 2012. | |
YOUR HOSTS Tesha Buss is the owner/creator of Good Commons and a partner in The Good Retreat Company. Raised on a dairy farm and doing back flips by the age of three, Tesha reached her childhood dream of becoming a Broadway performer, only to discover that a new dream--a retreat center to rest and revitalize--would soon reveal itself. She welcomes the revolving door of health and wellness professionals, artists and vacationers. She is a member of the Okemo Valley and Killington Chamber of Commerce as well as Rotary International. Erin Smith (Co-Host) was diagnosed with Celiac Disease in 1981 and "grew up on a gluten-free diet in a gluten-filled world." As an adult, she has become extremely involved with the Celiac community, both online and in person. Erin started the blog Gluten-Free Fun in 2007 as a way to show the world that being gluten-free should not stop you from living your life. In 2011 she launched the blogGluten-Free Globetrotter to encourage others on a gluten-free diet to travel the world. In addition to her blogs, Erin oversees the NYC Celiac Disease Meetup Group. This is a social group where members can get together to enjoy gluten-free meals, share food recommendations and recipes as well as learn from one another. Through her blogs, leadership of the Meetup group, and community advocacy, Erin encourages others to not allow their lives to be limited by Celiac Disease but to thrive in all aspects of their lives. Matthew Wexler (Chef) is a regular in the Good Commons kitchen, as well as a freelance food, travel and lifestyle writer. He is proud to share the bounty of the Northeast with all those who visit Good Commons through fresh, vibrant and accessible cuisine. His culinary training includes years at his mother's side, along with coursework at the French Culinary Institute. Matthew has written about everything from barbecue to bed and breakfasts for Hemispheres, Go Magazine, Passport, ATOUT France and Out There as well as online for EDGE Media Network, The Daily Meal, offManhattan,Endless Simmer and his own blog, roodeloo.com. He is currently writing and recipe-testing the Good Commons food memoir, Uncommonly Good. Kristen Siebecker (Sommelier) has been a great fan of viticulture and vinification since her first illicit sip of Boone's Farm wine beverage many years ago. More recently, she became a Certified Sommelier through the Court of Master Sommeliers, completed the Advanced Certification program from the WSET with distinction and is certified in Advanced Blind Tasting by the American Sommelier Association. You'll find Kristen at the NYC East Side Best Cellars wine shop, advising customers and assisting in the store's Sommelier for an Evening program. Diagnosed with Celiac Disease since 2007, Kristen is a co-organizer of the NYC Celiac Meetup group and has hosted numerous wine tastings. She is also a beverage consultant for Good Commons. Follow Kristen's wine adventures at www.WinewithKristen.com Jessica Ruth Shepard (Massage Therapist/Facilitator) received her professional training as a Holistic health Counselor from the Institute for Integrative Nutrition in New York City, where she studied and became an expert in over one hundred dietary theories and practical lifestyle-coaching methods. Prior to her study in holistic health counseling, Jessica participated in a concentrative bodywork program at Antioch College, managed a yoga and Pilates studio in Denver, Colorado, wile simultaneously running her own successful massage practice, and worked with hundreds of athletes on numerous cycling tours, in addition to privately. Jessica has studied several alternative healing methods, including: The Rosen Method, Polarity Therapy, and stress reduction techniques. http://www.goodcommons.com/GF2012meetup.html |
Labels: "gluten-free travel", "Good Commons", gluten-free
Labels: "Recipe of the week", GlutenFreely, recipe
Labels: "Whole Foods", gluten-free
Labels: "Whole Foods"
Labels: "Joan's Gluten-Free Great Bakes"
Labels: webinar
Labels: "Recipe of the week", recipe
Labels: "gluten-free fun", review
Labels: "gluten-free fun", blog, bloggers, CeliAct