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Friday, November 2, 2012
Hurricane Help from Gluten-Free Companies
Gluten-free companies are stepping up big time to help those affected by Hurricane Sandy. This will be a running list of those companies that have pledged food, money, time, or all three to the relief effort.


1-2-3 Gluten-Free: 1-2-3 Gluten Free has teamed up with Feeding America to help those in need from this destruction. If you purchase any 1-2-3 Gluten Free baking mixes from their online store from now through November 8th, they will donate $1 per item to those in need. There is no special promo code and no limit -- the more product you purchase, the more they are able to donate. This is a great time for you to stock up for the holidays while helping others.

Pamela's Products: Monetary donation to the Red Cross. Pamela's is also matching all donations made personally by employees

Tricia Thompson, MS, RD of The Gluten-Free Dietitian: Tricia made a donation directly to the Food Bank of NYC using Amazon Prime which will arrive in 2 days. Her gluten-free food donation included breakfast cereal, snack bars, and macaroni and cheese.

HauteMealz.com: According to their Facebook page, hautemealz.com will be donating the first-month payments on all new menu subscriptions between now and Christmas (end of December), as well as a portion of all subscription payments made by current members, to the American Red Cross International Response Fund toward Hurricane Sandy relief.

Udi's Gluten-Free Food: According to their Facebook page, Udi's will donate  bread, granola, and cookies to the following New York Food Pantries: City Harvest Food, Long Island Cares, and the Food Bank of NYC.

KIND Healthy Snacks: According to their Facebook page "In the wake of the hurricane, which has greatly impacted the KIND community - the KIND team will continue to share tens of thousands of bars along with 'thank you' cards to emergency personnel across the region throughout the next week – and we'd like to have your words printed on the cards."

I also received this email from a KIND employee: "we've been very busy getting bars into the hands of the people that need them most this past week... A volunteer that worked at one of the shelters we visited in Manhattan last week was almost in tears when we delivered 1,500 bars. He is a celiac and was unable to eat any of the food the shelter had onsite."

Dauphin Bakery: A local Brooklyn gluten-free bakery brought gluten-free, vegan cookies to the volunteers cleaning up DUMBO (Brooklyn).

Glutino: According to their Facebook page "We are pleased to be able to announce Glutino just sent out donations of our gluten free Breakfast Bars and Pretzels to help those affected by Hurricane Sandy. These will be delivered to the following locations: City Harvest Food, Long Island Cares, and the Food Bank of NYC."

NuGo Gluten-Free: According to their Facebook page: "At NuGo, our hearts go out to all of those on the East Coast affected by Hurricane Sandy. We sent a pallet of gluten-free NuGo protein bars (Dark, Free, and Slim) to NY and NJ to be distributed to those in need. You are in our thoughts as we hope for a speedy recovery."

Namaste Foods: Namaste Foods is going to donate 25 cases (approx. 175 lbs) of their mixes to include Pancake/Waffle, Muffins, Spice Cake and Pizza Crust to City Harvest.

Rudi's Gluten-Free Bakery: Rudi's has shipped gluten-free tortillas to City Harvest, Long Island Cares, Island Harvest, and to the drop-off donation site in Freeport, Long Island.

Kinnikinnick Foods: Donating about 1200 cases (4800 packages) of gluten-free bread and buns to Long Island Cares and City Harvest, 600 cases per location!

Bakery on Main: Bakery on Main has made a $1000 donation to the United Way Hurricane Sandy Recovery Fund. They chose for their money to stay in CT and help their home state. They have also sent out 400-500 granola bars to the Community Foodbank of NJ.

Jules Gluten-Free: Jules has donated a case of certified gluten-free oats to a food bank in New Jersey.

Dr. Schar: According to the Schar Facebook page: "With the devastating aftermath of Hurricane Sandy, New Jersey-based Dr. Schar, USA is thankful for the efforts of the Community FoodBank of New Jersey and the food pantries it supports statewide. On behalf of the Schar employees, we have made a $5,000 donation to support the distribution of food to those in need. If any of our fans would like to also contribute , please visit www.njfoodbank.org for more information."

Three Dogs Gluten-Free Bakery: Karen, the owner of Three Dogs GF Bakery, collected gluten-free food and donated directly to the Long Island Cares Food Bank at 84 Pine ST., Freeport, NY 11520.

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Friday, November 12, 2010
Gluten Free “Healthy” Brownie Recipe
Last month, Sandy Merrill, MPH, CHHC, Certified Holistic Health Coach gave the NYC Celiac Disease Meetup group a very interesting talk about the gluten-free and diabetes connection. Afterwards she shared her recipe for "healthy" brownies.

Gluten Free “Healthy” Brownie Recipe
Garbanzo Bean Brownies
by Sandy Merrill

(All ingredients should be available at Whole Foods or Fairway or health food store)

1.5 cups (250-280 grams) good chocolate like Black & Green Organic Chocolate –(I use
mostly 70% Cacao but you can add in some flavored chocolate as well-like Espresso or
Orange, etc.)
2 cups cooked garbanzo beans (=one 25 oz. can, drained and rinsed well)
4 eggs
2/3 cups of honey
½ cup walnuts (optional)

Melt chocolate. Blend eggs in food processor so air gets whipped in. Add beans and honey to eggs and blend together. Add melted chocolate and process until smooth. Pour batter into 9” buttered pan. Bake at 350 degrees for 40 minutes. Let cool before licing.

(These freeze very well.)


From Sandy Merrill, MPH, CHHC
Certified Holistic Health Counselor
www.sandymerrill.com
212-472-3177

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Tuesday, October 30, 2012
Gluten-Free Labeling Update
6:45am, October 30, 2012: I wrote this post yesterday before things got really bad here in NYC. I am devastated as I wake up this morning and see the reports of what Hurricane Sandy has done to NYC, Long Island, and all up and down the East Coast. I am ok, but waiting to see what daylight brings. My thoughts and prayers are with everyone affected by Sandy. More updates to come, but for now here is my post from yesterday. 


While I am sitting here in the middle of Hurricane Sandy, I received an email that actually made me smile. This is an email from not one, but FOUR national Celiac associations in the United States. I think an email like this is unprecedented. All four major Celiac organizations are urging you to sign the petition to help urge the government to complete the gluten-free food labeling rules. The deadline for this petition is this THURSDAY!! If you have not signed this petition yet, I encourage you to do so. If not for me, then do it for yourself. Thank you to the four national Celiac associations that are helping to spread the word about this labeling law.



Dear Friends, 
In 2004, the historic Food Allergen Labeling and Consumer Protection Act (FALCPA) was passed, making life significantly easier for individuals with food allergies to manage their potentially life-threatening health condition. The celiac disease community worked for those requirements understanding that the benefits would flow to them as well. 
Today, only one provision of FALCPA remains to be implemented - setting a standard for gluten-free food labeling rules. 
To help educate decision-makers about the need for this standard, the celiac disease community is taking advantage of a new forum to make sure its voice is heard loud and clear. 
A "We the People" petition was launched earlier this month, urging government officials to complete the gluten-free food labeling rules. Located on the White House website, it has already garnered 16,000 signatures, and officials will be required to respond if 25,000 signatures are gathered by Thursday, November 1st. 
We are reaching out to all stakeholders who serve the needs of those with gluten-related disorders, including patients and their families, healthcare providers and gluten-free businesses, to join us in this important effort. By adding your name, you will help to reinforce the strength of our unified voice. We aim for officials to understand that gluten-free labeling rules matter in the lives of thousands of Americans. You can help to support the government in its ruling process by signing the petition today. 
With the storm on the East coast this week, our thoughts and prayers are with our community members who are in emergency conditions. The rest of the national community will redouble efforts to shoulder the petition effort in support, and seek ways to help after the storm. 
We hope that you will take a few minutes to read and sign the petition. Once you have signed your name, we invite you to share the message with others who are committed to ensuring that individuals with celiac disease have safe gluten-free food options. Additional background can be found here.

Thank you in advance for supporting the needs of the gluten-free community and helping its members achieve optimal health.

Best,
National Foundation for Celiac AwarenessAmerican Celiac Disease AllianceCeliac Disease FoundationGluten Intolerance Group

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Tuesday, November 6, 2012
GF Hurricane Relief: District 21st Queens
I wrote to Councilman Dromm in Queens asking him where to donate gluten-free food. In 2011, Mr. Dromm introduced two pieces of legislation concerning gluten: Int. No. 502 and Res. No. 689. The passage of these bills in New York City would hopefully increase understanding nationwide about celiac disease and the importance of proper labeling. Council Member Dromm has a very personal connection to Celiac Disease, his mother has it and so does one of his former interns.

A few hours after I wrote to Mr. Dromm, I received an email from a friend that also works for a city council member. She said she was excited to see an email about gluten-free donations pass through her inbox and happy to see it was from me! I believe things happen for a reason and because of this email, I am now happy to report this:


Dear Neighbor:

In these challenging times as we recover from Hurricane Sandy, we must join together to provide relief to the victims of this devastating storm. New Yorkers have been incredibly generous with their donations and time, but the needs are ongoing.

My district office will serve as a collection site for donations going to survivors of Hurricane Sandy. Please bring your donations by 5pm this Friday November 9th.

Please bring donations to:
32-33A Junction Blvd
East Elmhurst, NY 11369

We are accepting donations from 9am-5pm

Your generosity is greatly appreciated, but please focus your donations on the items that people most need. Please look at the list below and give as you are able. 

Most sites are NOT accepting clothes right now. PLEASE DO NOT BRING CLOTHES. 

MOST ESSENTIAL ITEMS - Work gloves, batteries, flashlights, face masks, thick black contractor bags, warm blankets, toiletries, feminine hygiene products.

MOST ESSENTIAL MEDICINE ITEMS - Baby cough medicine, BAND-AIDS, Neosporin, Ace bandages, Advil, Tylenol. Please bring unopened containers.

CLEANING SUPPLIES - Mops, brooms, shovels, bleach, Clorox, buckets.

MOST ESSENTIAL FOOD ITEMS - bottled water, orange Juice, apple juice, granola bars, powdered milk, jelly, bread, and pet food. There is also a vital need for GLUTEN FREE FOOD. 

MOST ESSENTIAL BABY ITEMS - jars of baby food, formula, bottles, diapers and especially WIPES. Many parents do not have baby wipes for their children.

GENERAL DONATION TIPS - Please do not use this as a time to get rid of your unwanted items from your apartments and homes. Please organize your donations and clearly mark them so that they can distributed easily and quickly. Plastic grocery bags and carts for people to carry away their supplies would also be useful.

 If you are interested in volunteering with relief efforts, please call my office at 718-651-1917.

Sincerely,
Julissa Ferreras
New York City Council Member
(718) 651-1917
julissa.ferreras@council.nyc.gov

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Gluten-Free Hurricane Relief: How to Help
As I mentioned in yesterday's post, I have been spending all week trying to help out Hurricane Sandy victims as much as I can. I wish I could do more. I've donated money, food, clothing, and tonight I am donating my time collecting donations for residents of the devastated Breezy Point, Queens. Many people are asking me how they can help, so I am putting together this ongoing list. I will add to it as I learn more. Please add your comments below if you have additional information.


(Gluten-Free) Food Donations

My heart goes out to the millions of people who had their lives turned upside down due to this storm, but I cannot help but think about those who need gluten-free food. There are very few food banks in this country that make an effort to carry gluten-free food. I am pretty sure that most food banks in the tri-state area do not have the gluten-free essentials they need, if any gluten-free food at all. Food banks need food and money!

Are you a gluten-free food manufacturer? If so, here are organizations that take bulk food donations. I have contacted many of these organizations directly about specifically giving gluten-free donations, but have not yet heard back from any of them. I am sure they are inundated with calls right now so as soon as I hear back, I will update this page with that information. Please make sure to contact them directly if you have questions. Monetary donations are always accepted as well.

All of these links go directly to the food donation inquiry pages.

Update as of 11/8 at 9:45am EST: CONFIRMED.
They are accepting gluten-free donations! 

The following are now accepting gluten-free donations and will do their best to make sure the proper people receive this gluten-free food. Please click on the name for more information specific to that food bank.

Long Island Cares
City Harvest
Food Bank of NYC
Long Island drop-off in Freeport, NY
Island Harvest
Community Food Bank of New Jersey* revised
District 21st Queens, NY
Three Dogs Bakery (Westchester County)
Shop Rite in New Dorp (Staten Island)


Food banks (pending response)

New York City
Red Cross
AidMatrix, sponsored by FEMA
Feeding America
Masbia (Kosher food donations only!)

Long Island
The INN

New Jersey
The Foodbank of Monmouth and Ocean Counties
Food Bank of South Jersey
Philabundance



Other ways to help

Finding Gluten-Free Food in NYC

I've asked the NYC Celiac Meetup group to keep us posted on where to buy gluten-free food in the tri-state area. If you know any place that sell gluten-free food and have reopened especially in lower Manhattan, please add your comments here: http://www.meetup.com/Celiac/messages/boards/thread/28319592


Click here to learn about gluten-free companies that are helping with the hurricane relief effort.

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Thursday, November 1, 2012
Hurricane Sandy Reflections
Devastating. Heart-breaking. Surreal. Incomprehensible. 

These are just some of the words I can think of in the post-hurricane daze I am in this week. I had to stop watching the news because I cannot take any more sadness. The images I am seeing on the news, the stories I am reading online, and the pleas for food and water I am reading on Twitter are breaking my heart.

Sunday night was honestly one of the scariest nights of my life. I live just outside of one of the NYC evacuation zones so I hunkered down in my apartment glued to the television and my computer. My mom lost power as of 2pm on Sunday, so I couldn't call her. My building started shaking like a freight train was running directly through the hallway. I was scared, I was crying, and I was alone. My social media outlets became my lifeline to everyone else and what they were going through. We were all freaking out by what we heard and saw on TV. We shared virtual tears as the East River and the Hudson River both breeched their banks and slowly crept across Manhattan. I saw neighborhoods I know so well being inundated with water and knew that life in New York City was immediately going to change. I finally pried myself away from the television around 1am and attempt to sleep. I was awake by 5am and back in front of the television. It was still dark out so I knew I had a few more hours until I would start to see how hard Hurricane Sandy hit our area. I could never have imagined what would come next.

Floods. Fires. Death. Destruction.

I sat in my apartment on Monday morning and sobbed. The photos were devastating. Breezy Point Queens, only 20 miles from my house lost 111 houses due to fire. NICU babies had to be evacuated from the NYU Langone hospital due to power issues. 8 square miles of Manhattan were in complete darkness and still underwater. The Jersey Shore and Long Beach, Long Island were under feet and feet of sand. How did my beloved tri-state get hit so hard by this tragedy?

I was VERY lucky. I had lights flickering and nerves rattling, but I was fine. My neighborhood was full of wind debris and lots of downed trees/power lines, but we were all ok. I worked from home on Monday in a complete daze. My clueless coworkers on the other side of the country were asking me ignorant questions and upper management barely addressed our situation. Not all of our NYC employees were accounted for until Tuesday night, yet no one from executive seemed to worry about this. This made me very sad. The NYC employees stayed connected as best as we could until we knew everyone was safe. This was midnight on Tuesday. Management said "NYC employees were in high spirits." I call bullshit. How could we be given the circumstances? 

I continued to watch the news until I just couldn't watch anymore. My heart was full of sadness so I turned it off. I continued with social media and became an absolute Twitter junkie. Family and friends started to reach out via text, emails, and phone calls. I was surprised by many of these calls and disappointed by the lack of contact from others. "Best friends" still haven't checked in on me. It's Thursday. I sucked up my pride and reached out to people that I've had fallings out with over the past few months. I wanted to pass the olive branch and give a place to stay. It was a nice way to reconnect and appreciated. 

I was searching for ways to help my neighbors, friends, and family. I offered my apartment for hot showers and phone charges yet no one came. Everyone has been fiercely loyal staying put in their apartment, which I can understand. I donated money to the local Red Cross. I gathered donations of food, socks, and baby supplies for the local housing projects that got evacuated. I volunteered to collect additional donations for the displaced and homeless storm victims this Friday night. Yet, I feel like it is not enough.

I know my city is resilient and we can pull together in a time of devastation. We've done it before and we will do it again. I just don't know if I can ever comprehend the magnitude of loss that so many friends and family are facing this week. I don't think any of us can. 

I am working on putting together a list of ways to help my community as well as those with gluten-free needs in the tri-state area. I've already done a lot but I know there is much more to do as we are on a very long road to recovery. Please stay tuned for my Friday morning post. Once you read it, please share with anyone and everyone you can. Even if you are far away, you can help.




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Monday, November 26, 2012
Gluten-Free Emergency Planning
Hurricane Sandy was a few weeks ago, but there are still so many people who are still without power and many who are homeless. The hurricane was a wake-up call to many celiacs wondering if they were prepared for a disaster like this one. The packing of food, medication, and water is essential when preparing for a natural disaster. My colleague Cheryl Harris, MPH, put together a great list of suggestions for preparing your gluten-free "go" kit for a natural disaster. Her list includes gluten-free canned goods, starches, ready-to-go meals and even snacks. It is better to have a safe bag of food prepared and to never use it than to have nothing ready for a time of emergency. Click here to read Cheryl's article. 


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Thursday, November 8, 2012
Gluten-Free Hurricane Relief Efforts Update
Here is a summary of my posts over the past week. Information was getting a little hard to manage, so hopefully this list helps you.

Gluten-Free Hurricane Relief: How to Help
Original post of where to donate, how to help, where to volunteer, and where to find gluten-free food in the NYC area


Hurricane Help from Gluten-Free Companies
A list of companies that are helping to support the hurricane relief efforts


Gluten-Free Hurricane Relief: Where to donate and find gluten-free food
Long Island
Long Island Cares
Freeport, Long Island Drop-off Center
Island Harvest

New York City/Staten Island
City Harvest
Food Bank of NYC
21st District of Queens, NY
Shop Rite in New Dorp, SI

New Jersey
Community Food Bank of NJ

Westchester
Three Dogs Bakery


Hurricane Sandy: My Personal Reflections

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Tuesday, November 6, 2012
GF Hurricane Relief: Three Dogs Bakery (Westchester County)
This is my first confirmed Westchester donation location! Thank you to Karen Miller of Three Dogs Bakery for turning her gluten-free bakery into a donation site. Drop off your donations and buy some yummy gluten-free baked goods


Hello All! 
I hope this email finds you well. The bakery has power and is open.
Hurricane Sandy has shaken all of us, for sure. For me, it has certainly put things in perspective. Losing power for a week or more is nothing when others lost their homes. That is why I would like to do what I can to help.  
It has been brought to my attention by Erin Smith of the NYC Celiac Disease and Gluten-Free Meet-up Group that the shelters in Long Island and NJ are in need of gluten-free food. I always have a box here for donations of gluten-free food but we need more than that. The shelters said they want to be sure they have enough to be able to advertise it. Otherwise people will come and it'll be all gone.  
Please come to the bakery and drop off some non-perishable, unopened, gluten-free food. Whether it's something in your house or something you pick up the next time you are at the store. We will be taking donations all this week. I will load it all up and take it down to the food banks that need it.  
Thanks!
Karen

Three Dogs Bakery 
510 North State Road 
Briarcliff Manor, NY 10510.

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Monday, December 31, 2012
Gluten-Free Fun 2012 Year in Review
Another year has passed and again I am amazed how time flies. This has been a very busy year in both my personal life and my Celiac and gluten-free life. There were so many highlights to my year, so I thought I would pick my favorites to recap 2012. Happy New Year everyone!

January
February
March
April
May
  • I baked 31 cupcakes to embrace the 31 years I have been gluten-free and a diagnosed Celiac. 
  • I was a guest of honor at the 1st Annual Mid-Hudson Walk for Celiac. 
June
July
August
  • I shared my kitchen with (the now defunct) Celiacs in the House community. 
  • I went to Portland for the second time, eat ridiculously well and gluten-free, and even saw some gluten-free grafitti on the sidewalk. 
September
October
November
  • I started an amazing online campaign to collect gluten-free food donations for those affected by Hurricane Sandy in the tri-state area. 
  • I gave thanks for my Celiac Disease diagnosis and the gluten-free adventures along the way. 
December
  • I traveled to Denver, Colorado and found it to be a relatively gluten-free friendly city.
  • I sat back and reflected on what an amazing year 2012 has been for me and the gluten-free world. 

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Monday, September 30, 2013
Team Gluten-Free NYC 2013 Marathon Pledge-a-thon
For the second year in a row, the NYC Celiac Meetup group is hosting a virtual pledge-a-thon for Team Gluten-Free runners in the NYC Marathon. Sadly, last year's marathon was cancelled due to the devastating Hurricane Sandy, but fingers crossed that this year we are storm free. Read on for more information about CDF, Team Gluten-Free runners, and how to donate (and get a t-shirt!)




Join CDF Team gluten-free™ at the 2013 ING NYC Marathon and help raise more money than ever before! On Sunday, November 3, five amazing athletes will be running for CDF Team gluten-free™ to help promote awareness for celiac disease and non-celiac disease gluten sensitivity. This online pledge-a-thon is to help raise money for CDF Team gluten-free™. This is not an in-person event.
Please support this year’s CDF Team gluten-free™ runners at the 2013 ING NYC Marathon. Your RSVP and donation will go directly to CDF Team gluten-free™. Everyone donating $25.00 through this page will receive a T-shirt of your choice.
To donate $25.00, please RSVP here and pay on the event page using PayPal. All $25 donations and RSVPs on this page will get a t-shirt or tank.
For a limited time, you will get TWO t-shirts with your $25.00 donation! Don't delay! 


Wear your shirt with pride on November 3 when CDF Team gluten-free™ runs through the streets of New York City and cheer on the runners!
  


Since its inception in 1990, Celiac Disease Foundation has been at the forefront of celiac disease education, information, awareness, advocacy and support services. Charting a territory not ventured by any other official celiac disease organization, CDF was instrumental in bringing attention to the disease at a time when the word celiac, much less knowledge about it, was far from most people's consciousness. In the two decades since opening its doors, CDF stands as the "go to" resource organization for anything and everything celiac.
CDF Team gluten-free™ is a fundraising program that provides a simple way for athletes and non-athletes alike to raise awareness and funds for celiac disease and non-celiac disease gluten sensitivity. Fundraising efforts may include any event from marathons to triathlons, or even bar mitzvahs, wedding favors and virtual fundraisers! The money raised by CDF Team gluten-free™ participants goes directly towards summer camp scholarships for children on the gluten-free diet as well as celiac disease and non-celiac gluten sensitivity research, support and awareness programs. CDF Team gluten-free™ is the fundraising arm of Celiac Disease Foundation, a 501 (c)(3) non-profit, public benefit corporation. Visit the website for more information.

Please remember, if you would like a t-shirt you must make your $25 donation through this Meetup event page by RSVPing YES. Once you have made this $25 donation, I will contact you for your mailing address and t-shirt size.
Any donation helps CDF Team gluten-free™ and Celiac Disease Foundation. 
Thank you in advance!

If you would like to donate less than $25.00 to CDF Team gluten-free™ please do so using this link: http://www.crowdrise.com/tgfNYCrun

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